Sold by: Verana Health
Deployed on AWS
Qdata NMIBC is a curated, real-world dataset of 74,000+ de-identified patients with non-muscle invasive bladder cancer in the U.S. This exclusive dataset is derived from electronic health records in the American Urological Association (AUA) Quality (AQUA) Registry that are linked with medical and pharmacy claims data. Qdata NMIBC curated variables include T stage, grade, and treatment.
Overview
Overview
Qdata NMIBC is a curated, real-world dataset of 74,000+ de-identified patients with non-muscle invasive bladder cancer in the U.S. This exclusive dataset is derived from electronic health records in the American Urological Association (AUA) Quality (AQUA) Registry that are linked with medical and pharmacy claims data. Qdata NMIBC curated variables include T stage, grade, and treatment. Specific tables include patient demographics, treatment, visit, and observation.
For more information on Qdata NMIBC, visit veranahealth.com or complete this form to request a sample dataset or speak with a team member.
The AQUA Registry is a national Qualified Clinical Data Registry that collects real-world data from more than 2,200 active providers in the U.S. Verana Health has the exclusive rights to the management and analysis of this de-identified data, which includes more than 95 million patient encounters over 10 years.
Key Qdata NMIBC Variables
T stage
The Tumor (T) stage of the TNM staging system is a key clinical indicator for NMIBC as every patient is N0M0 if they have non-invasive muscle disease since there is no lymph node (N0) and distance metastasis (M0). T stage is extracted from EHR clinical notes.
Tumor Grade
This module provides grade information as extracted from the EHR clinical notes represented as either high grade or low grade. The higher the number, the less the tumor resembles a normal cell.
NMIBC Treatments
The patient treatment table includes longitudinal information for therapies using EHR data linked with claims to give the most complete view of real-world treatment patterns. While EHR data contains a variety of treatments, codes in this table have been subsetted to those associated with bladder cancer.
The treatments table contains (2) categories of treatments, Treatment and Surveillance. Examples of these are listed as follows:
Treatments
- TURBT
- Bladder biopsy
- Intravesical Therapy
- BCG
- Mitomycin
- Gemcitabine
- Valrubicin
- Interferon
- Docetaxel
- Doxorubicin
- Epirubicin
- Pembrolizumab
- Thiotepa
Surveillance
- Cystoscopy
- Cytology
- FISH
Use Cases
This Qdata module can be used to understand the real-world care and the journeys of patients with NMIBC that are treated within urology practices. For example, those who meet certain risk category criteria (e.g., high-risk NMIBC) or receive particular treatment types (e.g., BCG or chemotherapy treated populations). The data can be used to explore real-world disease burden, patient characteristics, treatment patterns, and clinical outcomes related to NMIBC due to the availability of longitudinal, linked EHR and medical/pharmacy claims data.
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Dimensions summary
This listing uses a single pricing dimension called Product Access (Units), offered at no cost. There are no tiers, instance sizes, or usage add-ons to choose between. The one dimension grants subscriber access to the product. Because it is free, there is no scaling based on quantity, term, or consumption. Qdata NMIBC is a curated, de-identified dataset covering non-muscle invasive bladder cancer patients, drawn from urology electronic health record sources. To obtain data tailored to specific study needs, you would work directly with the vendor's team beyond this access dimension.
Top-of-mind questions for buyers
It grants subscriber access to the curated Qdata NMIBC dataset at no cost. It covers de-identified bladder cancer patient data drawn from urology electronic health record sources. Data tailored to your specific study design, with custom inclusion and exclusion criteria, is arranged directly with the vendor and falls outside this access dimension.
No. This listing has one dimension offered at no cost. There are no tiers, quantity brackets, or usage meters. Your cost does not change with the number of users, data volume, or query activity. Nothing in the pricing structure triggers a charge or an upgrade.
The dataset reflects de-identified U.S. patients with non-muscle invasive bladder cancer. It includes elements such as date of diagnosis, treatment plans, T stage, tumor grade, and disease recurrence. The vendor links electronic health record data with other de-identified sources to show the patient journey.
veranahealth.com
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Delivery details
AWS Data Exchange (ADX)
AWS Data Exchange is a service that helps AWS easily share and manage data entitlements from other organizations at scale.
Additional details
You will receive access to the following data sets.
Data set name | Type | Historical revisions | Future revisions | Sensitive information | Data dictionaries | Data samples |
|---|---|---|---|---|---|---|
test_adx | Last 1 revisions | All future revisions | Not included | Not included |
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